Where are the strong voices speaking up clearly for biomedical tests and treatments for ME ?
Where are the strong voices standing up for the separation of ME and CFS ?
Anyone who really has ME knows they are being abused by the system . They know that none of the Charities are effectively speaking up and bringing about radical change .
There are not enough people saying the right things, doing the right things, challenging the institutions effectively enough holding seats of power to make a real difference.
How many more decades do we have to be abused and compromised away ?
It is uncomfortable to ask yourself :
....and if you are not, who have you given your power to to speak up on your behalf ?
“With unparalleled imagery and quotations the book describes like a surgeon what it is like to live a life as and with someone who is severely stricken with the devastating disease Myalgic Encephalomyelitis.”
“All our experience, over two decades of living with and caring for someone with Very Severe ME, finds expression in the MOMENT Approach.”
Greg & Linda Crowhurst
Caring for people with at the severe end of the spectrum, can be extremely challenging to get right it requires a quantum leap in understanding.
For more details please visit the : official demonstration website ,or click here to download a flyer. There is also a poster that is more suitable for people to use at home in windows and cars etc if they are unable to attend the demo. Feel free to download it here.
(Photo :Lightning Strike by Mark Coldren)
Four - fifteen in the morning and I'm thinking; what will it take for a phoenix to reach us here ? I hold Linda, my wife's, hand as Florencio Avalos emerges from the escape capsule ; his young son bursting into tears.
(picture : www.copyright-free-pictures.org.uk)